MIAMI — From April 14 – 17, Miami will become center stage for open discussion of sickle cell disease, with topics ranging from delivery of care to research and disease management in an era of healthcare reform, during the Sickle Cell Disease Research and Educational Symposium and the Annual National Sickle Cell Disease Scientific Meeting.
The symposium, sponsored by the Foundation for Sickle Cell Disease Research (FSCDR) at the InterContinental Miami, 100 Chopin Way, is open to the public.
Sickle cell disease is a genetic blood disorder that prevents oxygen from reaching the spleen, liver, kidneys, lungs, heart, or other organs, causing significant damage to the patient’s internal organs.
“The mission of the foundation is critical to helping individuals with sickle cell disease (SCD) become educated and empowered about SCD research,” said Lanetta Jordan, associate faculty at the University of Miami, Miller School of Medicine and president of the nonprofit organization, “while also providing a platform for scientific discussion that helps advance knowledge about the disease.”
The foundation this year will establish an endowed research fund of $10,000 on behalf of Sanya Richards-Ross, the first American woman in 28 years, and only the second in history, to become an Olympic Champion in the 400 meters.
As a BP athlete ambassador, Richards-Ross is allocated sponsorship funds to contribute to a charity of her choice. She has chosen the Foundation for Sickle Cell Disease Research, as she has family members who are affected by and have succumbed to the disease. The symposium will include a variety of presenters and topics.
To learn more or to register visit fscdr.org, or call Lanetta Jordan, 305-298-2680 or Cindy Geppert, 954-543-2134.
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